Two local women reach out to Scleroderma patients - KCBD NewsChannel 11 Lubbock

6/29/10

Two local women reach out to Scleroderma patients

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By Karin McCay| email

Edited by Kristin Beerman | email 

LUBBOCK, TX (KCBD) – Tight suckered lips may appear to be the look of a long time smoker, but they can be a symptom of a disease called Scleroderma. Scleroderma is a mysterious, often misunderstood illness.  It is not contagious or infectious, but it triggers a tightening of tissues, inside and outside the body, which may force the fingers to curl if it is not treated early. This is scleroderma awareness month and two patients in Lubbock are reaching out to find other patients in the area.

"If you have the education to treat you scleroderma, you can deal with it so much better," said Mickey Goodwin, a Sleroderma patient.

"What we share is how people learn, well I didn't get that, or I got that, or this helped me, that helped me, we're not there going, ‘Oh I hurt here, I hurt there,' you know it's to give each other ideas, brainstorm, and then we get advice from the doctors as well," said Chris Zavala, a Scleroderma patient.

The next Scleroderma Support Group in Lubbock will meet in August 7th from 1 p.m. to 3 p.m. at the Knipling Center, with patients, families, and medical professionals to learn more about the disease.  For more information, please call (806)794-1507.

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