Prader-Willi Syndrome Support Group and Walk - KCBD NewsChannel 11 Lubbock

Prader-Willi Syndrome Support Group and Walk

Some of you are aware of the toll child obesity can take on a child's life. What many of you are not aware of is a rare disease that does not give some children a choice.  This disease is called Prader-Willi syndrome and it is known for being the most common genetic cause of life-threatening obesity in children.

According to the Prader-Willi Syndrome Association, Prader-Willi syndrome (PWS) is a genetic disorder present at birth that typically causes low muscle tone, short stature, incomplete sexual development, and most importantly, a chronic feeling of hunger that can lead to excessive eating and life-threatening obesity. This unsatisfied hunger continues throughout the rest of their life.

PWS is often caused by a random genetic error occurring near the time of conception for unknown reasons. It is seen in people of both genders and all races, and it is one of the most common conditions seen in genetics clinics. It is estimated that one in 12,000 to 15,000 suffer from PWS.

Covenant Health is offering a support group for those affected by PWS. The group will meet the second Monday of every month, beginning June 11. The group will meet at 6 p.m. at the Knipling Education Conference Center, located on the sixth floor of the west parking garage, at 21st and Louisville Avenue. For more information, contact Brooke Phillips at 806.831.9220 or brookephillips38@yahoo.com.

Also, the Katie Kaicks Prader-Willi Syndrome walk will be held this Saturday at Mackenzie Park.  The walk starts at 8:00am, and will be a 5k event.  It is being held to raise money and awareness about Prader-Willi Syndrome.  The fee is $10 per person and $15 for a couple.  A post-walk event will include a rock-climbing wall and face painting.  

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