For about 15 years,
we've been following the story of Brianna Graves, an active
little girl at age nine, who was diagnosed with Gorham's Disease… or
"Vanishing Bone Disease". This time, instead of focusing on what
Brianna can not do anymore, we want to explain what she can do now… thanks
to a lot of generous people.
Robert Franklin of
Interim HealthCare says it started with an idea to remodel her bedroom, but it
snowballed. For many years, Brianna Graves lived here with her
grandparents, behind the doors opening of a one car garage stuffed with all her
belongings and a lot of medical equipment. (Brianna has a rare disease that has
left her bedridden with no movement below the neck.) Robert says, "Before
you knew it, we had people stepping up to say - how can we help - what can we
do?" Jasper Jowers, a builder and owner of Destiny Homes, says he didn't know
how their plan would all come together but "God works miracles and we just go
to depend on Him."
The miracle came this
spring behind the little white house where Brianna lived in the garage.
Bulldozers dug up a big chunk of the back yard between her grandfather's house
at the front and workshop at the back. At least 35 area businesses and
hundreds of volunteers answered the call to make Brianna's dream come
true… building a home of her own just a few steps in front of her
grandfather's workshop.
So how could she live
in a home of her own? The plan was to build a Smart House for Brianna that
would allow her to regain some independence. The sign by her front door
says Bri's Chateau. What you see when you step into her Chateau is a bedroom
with a large picture window, a full kitchen and a bathroom. What you
don't see is all the high-tech conveniences.
Tyler Dirks is the
mastermind with Innovative Designs that installed all the automation to make
Bri's house "smart". Now, he says, "So what Bri can do, she can control
all her lights, her fan, the TV, the temperature."
Brianna controls
everything through the dot on her lip, which acts as the mouse for her
computer. Tyler says, "She's moving her lips to control that mouse. We
have our software on her computer that controls the automation in the
room." So, when I asked her to turn on the fan, only her bottom lip
moved, but she turned on the fan! Brianna continued to show me all her new
tricks.
She turned the kitchen
light on and off several times. She lowered the thermostat and raised it again.
She showed me how she can choose from hundreds of songs to play whatever music
she likes, whenever she likes.
Perhaps the coolest
and most convenient trick of all was her new ability to raise and lower the
blinds to protect her eyes from the sun or just open up the room to the view
outside.
Tyler really bragged
about Brianna when he told me, "I remember I was trying to show her how to do
all this and she took the mouse away from me. She caught on in about five
seconds. Bri's real smart and especially computer savvy."
As for her medical
concerns, there's a little nurses station in her house too. Angie Graham was
sitting at that desk when I was there. She said, "She has nursing care
24/7." She also told me Brianna's new place is amazing compared to the
one sided garage where she used to come check on Bri.
Meanwhile, Brianna's
grandfather, Jim Torres, says he feels good knowing Brianna finally has the
privacy she deserves with her own place close to the main house. Jim adds that
he welcomes the job of Master Gardener, making sure the beautiful new landscape
around Bri's Chateau keeps looking good. "You hear so much in the world,
negative stuff, and you look at what's been going on around here these last few
months, all the volunteers and the God fearing Christian people doing
this for her, it's a miracle. It really is."
So what does Brianna
think about her new Chateau?
She told me, "I love
it." "Thank you to all the builders, all the I.T.
guys, and people who wrote scripture on my wall and brought housewarming gifts
or just visited. Thank you for making this house a home"
Thank you, Brianna,
for showing us that even when life becomes difficult, faith can bring a
community together and turn dreams into reality.
Copyright
2012 KCBD. All rights reserved.