TTU fraternity supports Lubbock child with Alström Syndrome

Fraternity hosts Basketball tournament for charity
Source: Ashlyn Tubbs
Source: Ashlyn Tubbs
Source: Ashlyn Tubbs
Source: Ashlyn Tubbs
Source: Ashlyn Tubbs
Source: Ashlyn Tubbs
Source: Ashlyn Tubbs
Source: Ashlyn Tubbs
The Texas Tech Alpha Tau Omega fraternity hosted a charitable three-on-three basketball tournament they called “Buckets for Bryce” Sunday afternoon.
The event cost $30 to enter, and 28 teams participated at Urbanovsky Park in order to help out children like Bryce Johnston, who suffer from Alström Syndrome.

“It’s a very rare disease,” Bryce said. “Heart failure, and I can’t see very well, and I take a diet every single day.”

Bryce was diagnosed when she was only three years old. At age seven, the disease has only progressively grew worse.

“As she gets older, more and more systems of the body will become affected,” said Cassie Johnston, Bryce’s mom. “Right now vision is one of the first ones, and she has some usable vision now…but she will lose all of it over the next couple of years. Hearing loss generally starts about six to eight years old, so we’re watching that very closely.”

Bryce is one of only three people in Texas with this genetic disorder, which is the reason Cassie and her husband Lynn created a non-profit organization, Alström Angels, in 2012.

“It is so rare there is not a lot of support for funding for research for treatments and a cure for these kids,” Cassie said. “When Bryce got diagnosed, there were less than a $100,000 every year to try to find treatments and a cure, and that’s why we started Alström Angels  because that just isn’t enough and we want to do something so that one day there will be a cure.”

While the ATO fraternity members had never heard of Alström Syndrome before, their event brought over 200 people out to support the cause…which is a sight Bryce will cherish long after her vision Fades away.

“It will make such an important memory that she can recall and visualize in her mind,” Cassie said.

LUBBOCK, TX (KCBD) - For more information, visit Alstrom Angels.

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